Ethics and Law

This workgroup discusses legal and ethical issues related to the use and communication of biomarkers, genetics, and other dementia risk information.

Below we describe issues of concern concisely along and provide references. This page is not legal advice.  Please consult a lawyer for your personal information.

Discrimination and Stigma

The most important thing to consider before seeking information related to increased risk for dementia is that you may not be completely protected from discrimination. Once you know about increased risk, if you are asked you MAY be required to tell this information.  Key areas where you may not be protected include insurance for long term care and for living in certain retirement communities.  For some genetic risks this may have an impact on your family, particularly if you have mutations that are likely to be inherited.

Example Presentation

Emily Largent


Topic: Interviews with A4 Participants on Amyloid Disclosure

*This information on this page has been prepared by members of the AGREEDementia for informational purposes only and does not constitute legal advice.

The information is not intended to create an attorney-client relationship. It is not legal advice or a substitute for obtaining legal advice from an attorney.

Any person who reviews the information should not rely upon it or act upon it in any manner without first engaging professional counsel.

This information is intended to communicate general information and may or may not be current.